中国家庭抗逆力：基于罕见病儿童家庭系统的研究-九九云书库

　　　　

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中国家庭抗逆力：基于罕见病儿童家庭系统的研究

作者：纪文晓

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本书在系统梳理国内外有关家庭抗逆力研究的基础上，分析了不同罕见病儿童家庭的风险因素和保护要素，总结出影响中国家庭抗逆力的三大系统和多个因子，归纳出五种不同的家庭类型。中国家庭抗逆力的主要动力来自家庭内部精英人物和家庭本身的组织结构、行为方式等的调整；主要阻碍除了个体人格特质、家庭结构与关系之外，还有资源和制度的制约。本书建构了罕见病家庭抗逆力模型，提出了增强中国家庭抗逆力的政策选择和社会工作服务模式。

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